Showing posts with label media. Show all posts
Showing posts with label media. Show all posts

04 August 2008

The R Word

For some reason my comment failed to publish on this post, so I'm putting it here:

This is patently offensive, and that this was allowed to go through to production this way is very telling how much farther we need to come before the general public realizes how harmful this is.

And I don't buy that "well, we're not REALLY making fun of disabled people, we're making fun of blah blah" - when you used that word, there's no way that it's NOT about disabled people, even when it's not meant that way, and to be so resistant to change use of a WORD. It's like how I saw a news person on TV say that when they used the word f****t in school, that they didn't REALLY mean gay people. It's a pathetic excuse.

I am autistic, and have had an IQ score of in the borderline range as well as in the gifted range, and have been called retard as well as a bunch of other physical and verbal abuse at school, which was justified by both students and counselors by my "weird" behavior, so I must just "expect" that treatment because I look so odd to them. Well, I can expect it and be used to it, but that doesn't mean it's right and it doesn't mean it should go overlooked.

Whatever the IQ score, whatever someone's adaptive skills or disability or whatever, it is hurtful and completely unacceptable that this passes for acceptable usage. I have know decent, kind people who have used this word, because they have absorbed it and also absorbed the justification that it's "not REALLY making fun of disabled people", but that's why this kind of thing needs to be countered - I don't want even MORE otherwise good people absorbing and using this offensive language, simply because society presents it as mainstream and OK.

24 March 2008

The Burden of Children's Health

I was watching the news when they started discussing people who elect not to vaccinate their children, with mention of the fear that vaccines may cause autism.

First of all, it made me sad that people are so uninformed and/or misinformed about autistic people that they'd rather not have one of us as their kids.

Second, I had to fight my natural inclination to blame plain, ordinary human stupidity and paranoia. The fact is that like the burden of proof that exists in a court of law, there is a burden of the health of not only our children, but those of future generations. We each carry a bit of this burden in the responsibility we exercise in our decisions, but there are others whose burden in protecting children's health is far greater than any individual alone.

Yes, the people who decry the vaccines for this connection they claim to have undeniable proof of, they carry a large portion of this (ir)responsibility. I hate it when people lie to other people, particularly those people who lie to parents, teachers, and others who have authority over the lives of children. While I am sure that some of the main anti-vaccine people actually believe what they are saying, there are many who are abusing the concern parents have for their children and using the lack of good information about autistics to this end.

In reading this blog post, I have come to a startling realization: the alternate vaccine schedule promoted, which omits vaccinations for measles, mumps, and rubella (doesn't even include them separately), in leaving children unprotected from measles, would result in 1-2 in 1,000 children infected to die of measles. If every child (or even a majority) weren't vaccinated, that would be a lot of kids overall. Maybe to the anti-vaccine people this is rare, but would these same people consider telling that same thing to each parent of the future children who would die this way?

Likewise, any individual or organization takes a larger share of the burden when they put out negative and misleading propaganda. Being autistic is not a ride on the merry-go-round (however many times we may spin!) but it is not a hell either (though oftentimes we are told it so much that we become depressed and begin to believe that some monster called autism is the cause of our sadness). And showing purely the negatives, and misinforming people about autistics leads to a parent fear having an autistic child more than a dead one.

For even if it was a well-accepted, completely verified fact that the vaccines cause autism, autistics can and do have good quality of life (which is remarkable not because we're autistic, but because the majority of autistics have been abused). A dead person cannot have a good quality of life. There is no opportunity for life. And there is no way to mitigate the disadvantages of being dead.